Today's Appt

Admiring her big sister!

Climbed/Fell in the toybox while getting ready to leave in the morning! She is becoming quite the monkey!

Well I saw the Dr again this morning. He thought her balloons looked really good. Her large hypertrophic scar on her side will be removed at the next surgery, she may have more that get big though, he said later in life we will do surgeries just to improve the scars as needed. Interesting concept, scars to fix scars. So knowing summers busyness and vacations I pressed him for an ETA on surgery, he said June they will be "full" but then we over fill and expand as able, wanting to avoid August all together due to vacation(s) we are aiming for Sept (gulp) 6 more months. This led me to ask for tips on the shots because they are getting SO hard, it is impossible to stabilize/restrain her belly and she knows how to roll it around to avoid the needle so its like playing darts with a moving target but much more important that you don't miss. He gave me a sympathetic smile and said he had no advice, this is a problem with her age and an indication that after this round we may take a break for awhile until she is in a more bribeable age (like Grace) which is all the more reason to get AS MUCH as we can this time so we are setting our sites on September, unless something goes wrong and they need to come out earlier. Finally, not to beat a dead horse, I took the plunge and challenged him one more time to explain the MRI results, and he clarified that it was indeed clear. However I said "good I can rest easy that that is clear" and he did suggest there were no guarantees that it was forever clear, I am taking it as good news unless told otherwise! So all in all a good appt, although I am exhausted thinking of six more months and seeing my husbands shoulders and face fall when I told him this as well I agree that we need to continue to get as much as possible. We will soldier on, we do shots Wed, Fri, Sat and Sun nights between 6:30 and 7 and would appreciate prayers for this process, as those of you who have witnessed it know its a tough job! An added praise was how well behaved big sister Grace was at the appt this morning, that always helps me get through these difficult appts. Have a great week everyone. Amanda