Update! and event

The Update is.....I have no update.  We were supposed to see Dr. Mann this Monday and all three girls in my household are ill! I have not been able to talk since Sun night, laryngitis is very inconvenient let me tell you!  You don't realize what you got til it's gone, right? We just came from watching my adorable niece and nephew run in a West Michigan run (the junior river bank) They each ran a mile and it was great to see so many kids out embracing health but it was hard to cheer when you can't even talk!  My sister actually told me about something happening next month, it's a good thing she is aware of what is going on with Spectrum Health even though I WORK FOR THEM!!! Nice, I am oblivious anyways.  Seeing as we have benefited from the wonderful services at...

...so many times and with this gorgeous new facility...

...I feel very blessed that if my daughter has to spend a lot of time in a hospital that this is the town we live in and she receives such high quality care.  Not to mention this guy....

...Gotta love Dr. Mann, he's the man!  Seriously if you ever see him walking around GR do me a favor and give him a hug and tell him thank you!

 That being said I always jump at every chance I can get to support this hospital!  So next month they are having a charity walk for HDVCH and it's in my sisters adorable little town. 

So I was looking at the website, they have a 5k run/walk or a family walk (1.5mi) I thought it would be super awesome if we could form a Team Sophie and support the hospital and come out and as a unified group to support my sweet baby girl and raise awareness about her condition.  If I can get your support to walk with us, I am going to see if I can find a place to get us team tshirts (I know nothing about this but I will do my best!) and we can have a fun event on what I will be praying will be a beautiful day and I know we could raise lots of money to help our little people in the community, because don't they deserve the best??? Let me know if you would like to do it with us and I will contact you about registration.

  Our rescheduled appointment is not till the week of the race, I hope then I will get an estimate on how much longer we have but for now things are going great, the Emla works wonders (we call it magic lotion) and allows her to get her shots with very little effect.  The only challenge is getting the timing right, having enough time to put the emla on and let it sit before shots.  Also getting clothes over her lumpy body but she doesn't mind she rests her arm on her tissue expander and strokes it and says "My bah-loon!".  If tonight is any indication of the race, Grace is more likely to ride in the stroller and my little Determinator Sophie would like to run free.  She was itching to get on that track tonight, hopefully next month she will get her chance and you can join us!